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avatar for François Houyez

François Houyez

European Organisation for Rare Diseases (EURODIS)
Treatment Information and Access Director, Health Policy Advisor
François Houÿez is working at the European Organisation for Rare Diseases EURORDIS where he is Director of Treatment Information and Access, Policy Advisor. He has always been working as a patient advocate since the early 90s, first in the HIV/AIDS advocacy, and in rare diseases since 2003. He represents EURORDIS at the Patients’ and Consumers’ Working Party at the European Medicines Agency (EMA) where he is topic leader for pharmacovigilance. He is member of the Web-RADR Management Board (adverse drug reactions reporting tools). François is also a patient.