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avatar for Sabina Kineen

Sabina Kineen

Patient Advocate
Fabry Disease
Diagnosed with Fabry Disease in her early teens, Sabina provides a unique perspective as both a patient and caregiver. Over the years, she has shared her experiences living with a rare genetic condition, as well as helping manage the complicated and multi-faceted healthcare needs of herself, her parents, and two of her children. Sabina has participated in several patient-focused meetings and has presented at various industry sponsored events. She, as well as many other family members, have participated in a variety of clinical studies in order to encourage the development of treatments within the rare disease space. Her main passion remains educating others how the diagnosis of an inherited, rare disease can impact an entire family.