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Isabelle Lousada

Amyloidosis Research Consortium
Chief Executive Officer and President
As a former patient, Lousada has spent 20 years dedicated to patient advocacy, accelerating drug development, and promoting awareness of rare diseases. Lousada founded the Amyloidosis Research Consortium (ARC) in 2015 to address the critical needs in clinical trials and related research for the underserved group of systemic amyloid diseases. ARC brings experts together to develop partnerships and address the challenges that exist in research while ensuring the patient perspective is central.