Wednesday, June 26 • 3:30pm - 4:00pm
#378.1 SB: On the Soapbox: Good for People and Good for Research - Individuals as Research Partners

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Component Type: Forum
Level: Basic
CE: ACPE 0.50 Knowledge UAN: 0286-0000-19-737-L04-P; CME 0.50; IACET 0.50; RN 0.50

The intersection of data privacy and an acknowledgement that research data lacks depth, diversity, and real-world information are driving new health database models. The benefits of promoting people from subjects to research partners will be covered.

Learning Objectives

Identify new models in patient engagement and data stewardship towards richer research; Analyze how patient privacy and data connectivity can co-exist; Explore the benefits of patients as partners in research versus research subjects.


Dawn Barry, MBA

avatar for Dawn Barry

Dawn Barry

President and Co-Founder, LunaPBC
Dawn Barry is President and Co-founder of Public Benefit Corporation, LunaPBC. LunaPBC launched LunaDNA, the first people-powered health data sharing platform owned by its community of data donors. LunaDNA members share in the value created by the platform through the offering of... Read More →

Wednesday June 26, 2019 3:30pm - 4:00pm
Room 16AB San Diego Convention Center 111 W Harbor Drive, San Diego, CA 92101 USA
  • Credit Type ACPE, CME, IACET, RN
  • Tags Forum