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Tuesday, June 25 • 2:00pm - 3:15pm
#262: Measuring the Impact of Patient Engagement Activities in Medicines R&D: A Way to Sustain the Cultural Change?

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Component Type: Session
Level: Intermediate
CE: ACPE 1.25 Knowledge UAN: 0286-0000-19-731-L04-P; CME 1.25; IACET 1.25; RN 1.25

Measuring the impact of patient engagement in medicines R&D provides a means of demonstrating effectiveness of the engagement and thus support for sustaining it. In this session, early results of IMI’s PARADIGM, other recent work on assessing value and measuring impact, and their role in supporting sustainability are discussed.

Learning Objectives

Describe the IMI PARADIGM Project’s overall goal and objectives for patient engagement (PE), high level project structure and methods, and early results related to measuring PE impact; Identify the benefits of assessing value and measuring impact of PE; Discuss the importance of PE sustainability and the role of metrics in supporting it.


Mathieu Boudes, PhD


Nicholas Brooke, MBA

Debra Michaels, MS

Lidewij Eva Vat, MS

avatar for Mathieu Boudes

Mathieu Boudes

PARADIGM Coordinator, European Patients' Forum
Mathieu Boudes, PhD, joined the European Patients’ Forum (EPF) in 2018 as coordinator of the PARADIGM project, a public-private partnership financed by the Innovative Medicines Initiative and co-led by EPF and EFPIA (European Federation of Pharmaceutical Industries and Associations... Read More →
avatar for Nicholas Brooke

Nicholas Brooke

Executive Director, Patient Focused Medicines Development (PFMD), The Synergist.org
Nicholas Brooke is Founder of The Synergist, a collaboration platform incubator that brings key players together with the express aim of solving significant societal problems through collective action. Under Nicholas’ leadership, The Synergist acts as a backbone, providing vision... Read More →
avatar for Debra Michaels

Debra Michaels

Associate Director, Scientific Programs and Patient Engagement Lead, DIA
In her content-focused role at DIA, Debra Michaels provides guidance on educational content strategy and development across the DIA Americas portfolio of educational programs as well as subject matter expertise in selected areas. She is the lead for DIA’s Patient Engagement thought... Read More →
avatar for Jaye Bea Smalley

Jaye Bea Smalley

Director, Global I and I Patient Advocacy and Life Cycle Management, Celgene Corporation
Jaye Bea joined Celgene as Global Director, Patient Advocacy and Life Cycle Management, Inflammation & Immunology in March 2018. Her twenty-five-year career in health care includes extensive experience in the public and private sector focused on advancing the needs and interests of... Read More →
avatar for Lidewij Vat

Lidewij Vat

Researcher and Lecturer Meaningful and Sustainable Patient Engagement, Vrije Universiteit (VU)
Lidewij (Eva) Vat is a researcher and trainer in patient and public engagement. Her work focuses on creating partnerships between patients, professionals and researchers to drive meaningful innovation. Her research aims to better understand the key conditions needed for patient engagement... Read More →

Tuesday June 25, 2019 2:00pm - 3:15pm PDT
Room 16AB San Diego Convention Center 111 W Harbor Drive, San Diego, CA 92101 USA
  05: Patient Engagement, Session
  • Credit Type ACPE, CME, IACET, RN
  • Tags Session