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Wednesday, June 26 • 2:00pm - 3:15pm
#362: Patient Engagement Quality Guidance: Results and Learnings from Global Multistakeholder Pilots

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.25 Application UAN: 0286-0000-19-686-L04-P; CME 1.25; IACET 1.25; RN 1.25

This panel session will present actual projects that are testing the Patient Engagement Quality Guidance in practice in various scope and context to determine how the guidance could have increased the impact or improve the results/outcomes in the projects.

The expert panel will share their interim feedback and learnings as well as challenges and how they’ve overcome them, focusing on the practical implementation of the PE Quality Guidance in these different situations. They will explore common themes and identify variations to provide a holistic overview of the usage of the PE Quality Guidance in different settings. The panel will also provide insights from different stakeholder perspectives on the use and value of the PE Quality Guidance and how it can facilitate an improved and systematic PE across the medicines’ development lifecycle. Speakers will include: representatives piloting/with practical experience of the Quality Guidance from patient/patient groups; academia and industry. Finally, the audience will get access to these resources to start their own PE journey.

Learning Objectives

Describe the Patient Engagement Quality Guidance and the seven quality criteria that it presents; Discuss actual projects from various organizations; Identify how to operationalize the guidance and move from paper to action; Describe a patient engagement platform that connects and interlinks people, organizations, initiatives, resources, and tools; Recognize the co-created resources.


Nicholas Brooke, MBA


Jennifer Martin

Kay Jane Warner

Thomas Gegeny, MS

avatar for Nicholas Brooke

Nicholas Brooke

Executive Director, Patient Focused Medicines Development (PFMD), The Synergist.org
Nicholas Brooke is Founder of The Synergist, a collaboration platform incubator that brings key players together with the express aim of solving significant societal problems through collective action. Under Nicholas’ leadership, The Synergist acts as a backbone, providing vision... Read More →

Thomas Gegeny

Senior Scientific Director, Envision Pharma Group
Tom Gegeny, MS, ELS, MWC joined Envision Pharma Group in 2006 and is currently a Senior Medical Director. He has over 20 years of experience in medical communications, including previous roles as Executive Director and Senior Editor at The Center for AIDS Information and Advocacy... Read More →
avatar for Jennifer Martin

Jennifer Martin

Vice President, Program Development, National Kidney Foundation
As Vice President for Program Development for NKF, Jennifer Martin is responsible for developing and implementing an overall strategy for NKF programs and services throughout the country, working in close collaboration and partnership with kidney patients, families, and living donors... Read More →

Kay Warner

Patient Engagement Lead, Patients in Partnership, GlaxoSmithKline
Kay Warner is a Director within the Patients in Partnership team at GlaxoSmithKline Research and Development. Kay moved to her current role as Patient Engagement Lead in January 2017 and is patient engagement subject matter expert at GSK having interacted with many individual patients... Read More →

Wednesday June 26, 2019 2:00pm - 3:15pm
Room 5AB San Diego Convention Center 111 W Harbor Drive, San Diego, CA 92101 USA