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Tuesday, June 25 • 4:15pm - 5:30pm
#289: Impact of Patient Engagement on the Biopharmaceutical Industry's Business and Organization

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.25 Knowledge UAN: 0286-0000-19-631-L04-P; CME 1.25; IACET 1.25; RN 1.25

Many life science companies are creating new functions or are re-organizing existing patient advocacy roles/departments to support expanding expectations for patient involvement in the research, development, launch, and delivery of new medical products. These newly defined roles require an understanding of and active communication with internal and external stakeholders. They are often on the leading edge of cultural change within their organizations, to help spread both the concept of patient engagement and practice of patient-centricity beyond early adopters. In this session, individuals serving in these positions will share lessons learned, thoughts on factors that contribute to success, describe hard and soft skills needed to be effective, and discuss how they're tracking progress within their companies. We'll compare reporting structures, pros/cons of centralized versus diffused models, and forecast what's ahead from a human-resource planning standpoint as patient-focused drug development matures.

Learning Objectives

Discuss the new patient engagement function within life science companies; Examine differences in where the function is housed within the organization and requirements of the position as well as helpful experience/training for the role; Identify experiences that contribute to success in balancing needs and expectations of internal and external stakeholders alike.


K. Kimberly McCleary


Jan Nissen, BSN, MBA, MS

Jessica Riviere, MHS

Angie Wilson

Nikki Levy

Joel Beetsch, PhD

avatar for Joel Beetsch

Joel Beetsch

Vice President, Global Patient Advocacy, Celgene Corporation
Dr. Beetsch, VP of Patient Advocacy in Celgene’s Corporate Affairs Dept., leads the global development & execution of a coordinated patient-focused Advocacy strategy working w/multiple patient, provider, payer, & policy organizations around the world to foster safe & effective solutions... Read More →
avatar for Nikki Levy

Nikki Levy

Vice President, Patient Engagement, Alkermes
Since April 2015, Nikki has been the VP of Patient Engagement at Alkermes plc, managing a variety of partnerships to incorporate the patient perspective into the company's programs in an effort to improve the health and lives of people affected by serious central nervous system (CNS... Read More →
avatar for K. Kimberly McCleary

K. Kimberly McCleary

Founder and Chief Executive Officer, The Kith Collective, LLC, United States
Kim McCleary has been at the forefront of patient engagement for nearly 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications... Read More →
avatar for Jan Nissen

Jan Nissen

Vice President, Patient Innovation & Engagement, Merck & Co., Inc.
Jan leads Merck’s Patient Innovation & Engagement organization comprised of Patient Insights, Patient & Consumer Experience, and Patient and Caregiver Alliances & Advocacy globally. She has been in the pharmaceutical industry over 30 years, serving in sales, training, marketing... Read More →
avatar for Jessica Riviere

Jessica Riviere

Senior Director of Global Patient Advocacy, Biogen
Jessica Riviere leads the Global Patient Advocacy for Biogen overseeing a broad neuroscience portfolio. Jessica’s advocacy experience spans diabetes, HIV/AIDS, immunology and oncology with several companies including AbbVie, Bristol Myers Squibb and Novo Nordisk. Early in her career... Read More →

Angie Wilson

Director, Alliance and Advocacy Relations, BioOncology, Genentech, A Member of the Roche Group
Angie leads patient advocacy at Genentech for Immunology and Ophthalmology. Her role at Genentech since 2011 has focused on building substantive, ongoing partnerships with non-profits built on transparency and respect.

Tuesday June 25, 2019 4:15pm - 5:30pm PDT
Room 5AB San Diego Convention Center 111 W Harbor Drive, San Diego, CA 92101 USA
  05: Patient Engagement, Forum